Coming to Terms...
Identical twins aka Monozygotic twins.
What does that mean?
Monochorionic-diamniotic twins are identical twins who share a placenta but not an amniotic sac.
How does this happen?
To form identical or monozygotic twins, one fertilized egg (ovum) splits and develops into two babies with exactly the same genetic information.
To create our type of twin the fertilized egg must split between days 4-8 after fertilization (it's like they were fighting already!) and then they embedded themselves in my cozy little uterine wall and began to grow together but separately. They are aware of each other and can hit and kick each other just as siblings love to do, they're just getting an earlier start than most.
I forgot to mention in my original post that from the first ultrasound they measured a week behind so my due date was moved to January 21. Not that it really matters because it's identical twins and identical twins don't go to 40 weeks they go 37 max.
At 12 weeks we feel comfortable enough to tell the world and we had a big sister who was bursting at the seams with the news! She had known about the twins from the first night that we knew about the twins and she had kept it somewhat secret. We made the cute little announcement at the beach to post to Facebook and of course it got a ton of likes and comments because babies are exciting but TWO new babies gets everyone all tickled. The "world" was on cloud nine with us.
August 5 at 16 weeks we went in for our bi-weekly sonogram and they measured tummies, heads, hearts, blood flow in cords, fluid levels and told us the sex. Now remember we were really rooting for some more testosterone for our household. Cue favorite dog getting run over right before our eyes kind of sadness - two more girls coming our way. I was secretly okay with it because I know what to do with girls but would be taking a huge learning curve with dirt and bugs and whatever other weird things little boys come up with. Back to the largest section in department stores dedicated to pink and purple lacy, sparkly, floral, unicorn and kitten things. In the world of sugar and spice and everything nice for another eighteen years. Plus, you feel a little less guilty for wanting to match your girls in almost every outfit. Yep, just like nine years ago I was okay with it. Daddy on the other hand couldn't help but feel some natural disappointment. I'm brought out of my pink haze by the sound of the fire alarm going off in the MFM's building. The doctor quickly says "We're concerned about fluid levels in Baby A. We would like you to come next week. Do you have any questions?" Well the FIRE ALARM is blaring so no questions could be formulated in my brain. They call the next day to set the appointment for August 12 at noon.
There are some things you should never do alone. One is when someone who is a high risk baby doctor says she is concerned about one of your babies is to go see her alone. But I didn't have the dread feeling so I went by myself. It was horrible. Baby B was having a party in her swimming pool like she always does and Baby A, well, she didn't move. She had turned facing my back and never even flinched. The only thing I can equate that to is a dead goldfish in a bowl only back up instead of belly up. My baby, the twin I never knew I wanted, wasn't moving but luckily she had a heartbeat. A good strong heartbeat. But time was not something to be played around with. Dr. Connor's looks at me, who is putting on the bravest strongest face that I only pull out when I am feeling defeated, and says the words I have been dreading since we went MoDi, "We believe your babies have developed twin to twin transfusion. We are sending you to Charlotte to Dr. Stephenson who is a fetal surgeon and she will do another scan and talk to you about your options". I stumble out an "Okay. Yes I understand. Yes I've done some research". I keep that face on until I get to my car and I call my husband and my cousin and I let the tears fall. The MFM office beeps in and says "Dr. Stephenson wants you in her office at 7 am tomorrow morning." I say "I will be there". Obviously 7 am is early which means they're concerned which has me even more concerned.
August 13 my husband and I make the hour and half drive to Charlotte and settle in for what is a long sonogram. More measuring of two heads, two hearts, two bellys, two cords, two this and two that. Little to no words are being said by anyone in the room. Baby A is still facing my back and still not moving but hanging in there with a heartbeat. You see, when a babies fluid environment gets to a certain low point they start using their energy wisely. She was using her energy just to literally survive. We then consult with Dr. Stephenson and she explains twin to twin transfusion.
Twin-Twin Transfusion Syndrome (TTTS)
is a condition unique to monochorionic twins. This type of twin gestation has two fetuses that share one placenta. Since the fetuses share one placenta, they have vascular connections through the placenta. In TTTS, the fetuses are not sharing the placenta equally. Instead, one fetus receives more of the placental blood supply than the other.
- Therefore, one fetus (the "recipient") receives too much blood and can become "volume overloaded". This increased volume results in increased fetal urination. While the other fetus (the "donor"), receives less of the placental blood volume and is "dehydrated" and does not urinate very much.
- The differences in fetal urination are what result in different levels of amniotic fluid volume. If this condition is left untreated, there is an estimated 80 to 100 percent mortality
We listen and nod. Listen and nod. Then she talks about stages.
- Stage I is an early stage in TTTS that reveals only a discrepancy in the amniotic fluid between the fetuses. One fetus can have "polyhydramnios" or too much amniotic fluid, while the other has "oligohydramnios" or too little amniotic fluid
- Stage II is when the bladder can no longer be sonographically appreciated in the donor fetus. The bladder is present but is empty, so on ultrasound we cannot visualize this structure
- Stage III is when we note changes in blood flow through the arterial or venous systems of either fetus. The Fetal Care Center of Cincinnati has broken stage III into three groups depending on cardiac function of the recipient fetus based on mild (a), moderate (b) or severe (c) cardiac changes
- Stage IV is when the recipient fetus becomes so volume overloaded that there is ultrasound evidence of severe cardiac compromise such that the fetus is hydropic and swollen
- Stage V is when there is a demise of one fetus
Our girls are stage IIIb. Something has to be done. The weekend was coming and like I said before time was not our friend at this point. She gives us a moment to talk it over. We look at each in complete agreement that we will do whatever it takes to at least bring one baby into the world. Surgery was scheduled for the next day at noon.
To Be Continued...